Taking care of yourself is taking care of your child.
Parents have a tough job. Everyday routines of caring for a child with autism can be an extra challenge. Add to that the need to get eight hours of sleep, exercise, and cook well-balanced meals. The advice given to parents to “take care of yourself” is well-meaning, but is it realistic? The answer is not always. Like everything that parents modify for a child with autism, you should modify how you approach self-care, too.
Often, parents prioritize the needs of the family over themselves. The flight attendant’s speech is very clear, “Put on your oxygen mask first!” Why? If you can’t breathe, how will you help your child? Stress can also impact the ability to care for a child. Managing personal health, therefore, must be viewed as putting on an oxygen mask.
Learn to let go.
So, what does “put on your oxygen mask first” look like for parents of children with autism? The first skill to develop is to “let go”. Let go of the idea of perfection. Let go of the expectations that probably are not realistic for anyone. Let go of doing it all. Now, take a deep breath before thinking this is ridiculous. The idea that “If I don’t do it, it won’t get done” is fine, but why does everything need to be done by you? Also, does it need to be done right now? Take a step back and look at everything you are doing during the day. What things can be done by someone else?
Parents are self-reliant and not accustomed to receiving help from others. Asking for help is not a sign of weakness or failure. Get comfortable asking for help and receiving it. Reach out to family and friends. If you don’t have family available, consider looking into organizations that can help. Online support groups are a great resource for finding help. Consider having groceries delivered. This is a positive that came out of the recent pandemic. Look at other tasks that could be outsourced to family or friends.
Spend time on things you enjoy.
Another skill parents may need to improve is making time to do activities they enjoy. Finding even 15 minutes to listen to music, workout, read a couple of chapters, or listen to an audiobook, can be refreshing.
Give yourself a break. You deserve it! Most people wouldn’t judge or scold a friend who didn’t get the breakfast dishes done or wore a shirt with wrinkles. Then why is that voice in your head so harsh?
Practice giving yourself the same grace you’d give to a good friend. It does take practice and commitment. Start with encouraging words when you spill your breakfast in the car. It could be, “It was worth the grease stain on my pants not to be hungry all morning!”
Pat yourself on the back.
Be proud of all you do! Congratulate yourself on another day accomplished. The day was a success, the kids are fed, mostly dressed, and in the process of falling asleep. That’s an achievement. The day with your child does not need to be perfect, but you made it through.
Change your outlook on the day. Search for something positive in everyday actions. Telling your partner how much you appreciate them making coffee. Look at the moon and stars while getting your child back to sleep. Finding the simple pleasures to retrain yourself takes some planning, but in the end, it can be what you need to take on the challenges of everyday life.
The most important thing is to take care of yourself, so you can take care of your child. Invest the energy in self-care to make sure you’re there for those who depend on you. Find what works for you and know you are worth the effort.
Written by Joe’L Farrar, M.E.d., CCC-SLP, BCBA, LBA